Showing posts with label Friends. Show all posts
Showing posts with label Friends. Show all posts

Monday, March 28, 2011

Where Has Kevin Been

  The long and short of it is I've been buried in pain and unconsciousness.  When I've been well enough to be awake and about, I've spent that time with my family.  My humblest apology to all my readers for this neglect.  I value your opinions, thoughts, feelings, and all the care and respect that you've showered me with.  I'm sorry that my two blogging projects were put on hold for so long, and I'm looking forward to getting back into them.

  I find it vaguely humorous that this dilemma is exactly why I stopped guitar lessons.  I loved to teach, but when I had the strength to do anything I did it with my family.  This time around has been more about me not being able to do much of anything over the past weeks.  I've been getting up, eating, and trying desperately to get back to sleep to avoid my pain.  Typically, this process ends when I pass out on the couch from the pain, and come to some time later to get a drink, and then repeat the process.
  Not all days have been bad.  I had a nice, long day last week, spending time with my best friend, Jhon Baker.  That adventure took place on Wednesday and I didn't recover until late yesterday.  I was able to go watch my son swim again last week.  That half hour ordeal left me worried that I wouldn't be able to make the Wednesday trip...
 
  This is the way my life works; is carefully balanced.  I have to select what I want to spend time on, and let go of everything else.
 

Wednesday, January 19, 2011

Let's Try This Again

  Last week I missed my appointment with my primary care because I ended up in the emergency room.  The appointment was rescheduled for today, and last night I thought I was going to end up in the ER again.  This morning is a different story.  I'm awake, in pain, but doing well enough to not need the ER visit.

  We'll see how the rest of the day goes...

  I've been trying to dedicate a little bit of each day to working on some writing.  I'm in the midst of co-translating a Danish novel for my friend L.G. Jensen, working on three poems, my own novel, and writing three songs.  A little bit each day is all I aim for, and, when I can do no more, I lay down and rest. It's aggravating not being able to work through things consistently, but I'm happy I get a little bit of time each day to try and accomplish things.

  The pain is getting very difficult to manage.  I hope today's visit will yield a better arrangement to controlling my pain.

Sunday, January 9, 2011

Wicked Dreams

  Yesterday evening we spent in good company.  Children doodled, smiled, ate, and talked excitedly while we grown ups talked about many things.   One of the conversations I enjoyed was about Jhon's book, 'Hands on the Hips', which is a must have for any poetry enthusiast, lover of good writing, or people looking for something new to discover.  We also discussed our current reads and his future works to come. I honestly can't wait to get my hands on his next collection.  From our family to yours, Jhon, our sincerest thanks for a wonderful evening.

  For the last few weeks I've been having these terrible dreams from which I can't escape.  I know I'm dreaming, and I can't wake up.  They're terrifying dreams where my leg and arm are being destroyed by one thing or another, and I honestly don't want to close my eyes.  Some mornings I don't even know if I'm awake, or still dreaming...
  I feel like I'm coming unraveled...

  Today I'm going to try to add some new songs to my growing list.  If you're interested in taking a listen you can find them on my SoundClick page or on my FaceBook page.  Hopefully I'll have two new songs up by the end of the week.  At least that's my goal.  And to keep writing, a little bit every day.
  There's a meeting of the Illinois RSDS Association, but I'm unsure that I'll even be able to make it today.  The pain in my leg is horrendous, and my arm is swollen and throbbing.

  In the near future I'll hopefully be getting another free art lesson from my good friend Scott Little.  He's a freelance artist in the Crystal Lake area, and he's VERY good.  I'm also highly anticipating another couple lessons on poetry from Jhon.  I couldn't be more fortunate when it comes to the incredible people in my life who are helping me.  God bless all of you.

Thank you for reading,

Kev

Wednesday, January 5, 2011

The Dust Settles

  So the dust has settled and I'm able to write again.  My family is safe and sound; gifted with parents who love us and took us in.  The Chicago Tribune article caused quite the ruckus, and I already have appointments for re-evaluation in a couple weeks.  Funny how it took months before, but now only takes a day or two...
  I plan on putting up all the ratings material from my case after the appointments and ratings letters arrive.  This can then be used for others in the military with RSD.  They can hand that in and use it as a template for how they'd like to be rated.  God willing, it will make their road an easier one to traverse than ours.  To all of you who have helped me with my cause, my sincerest thanks.
  The room I'm living in is providing me the capabilities to write, and record, my music because I can recline while recording and don't have to sit upright.  Sadly, my RSD seems to be spreading into my right arm and hand...
  My night terrors are getting worse, and I'm finding it harder to wake from them.  It's like being trapped in hell most nights.  Those dreams where you fall, and awake before you land...  I don't wake up and suffer the landing.  I have some medical appointments with a PTSD doctor to discuss these symptoms.  I pray they have an answer...

Wind blows.
Fire burns.
Water runs.
And the earth,
She's rising up,
To meet my feet.

Thank you for reading,

Kevin

Friday, December 24, 2010

Medical Appointments, Breakfast Reservations, and God's Angels

  Just six hours till Christmas.  I honestly didn't think we'd have one this year, but several groups donated so much that we've been able to have a nice meal and Santa will show up for Lincoln.  This year God's angels were hard at work in our lives, and I hope that next year I will be able to be one of those angels.
  This morning we spent time with some of my old friends from school.  We had a nice, simple breakfast at Around The Clock restaurant, and I'm paying the price for my good time.  It was worth every minute of pain though.  It seems so odd to see people I used to share classes with sitting with their own children, and it makes my heart skip a beat when I realize how amazing those people will be as parents.  We may have been one of the last generations that lived without the bombardment of the digital world, and I know that we'll succeed in creating a pocket of individuals who appreciate hard work and earning.
  Yesterday I made an appointment to see a PTSD doctor about my night terrors.  As I had commented on one of my previous threads, last night's was the worst.  I kept 'waking up', but not really waking up.  It happened seven times before I finally found myself in the real world, and I've spent most of the day half expecting to wake up after having something terrible happen to my right leg.  Maybe tonight I'll not have them, more likely I will.
  My son and wife are both ill.  Nothing serious, just head colds, but enough to keep us from being able to spend time with my mother and step-father because of his recent surgery.  It's best that we not get him ill because we love him and want him to stick around for quite a while longer.  So, it's just been us for the day, and it's been wonderful.  Lincoln is playing a game on the PS3, and trying to goad Amy into playing too.  They fight so much when they play together, and all I can do is chuckle.  Someday they'll learn to work together...  Someday...

  God blessed me this year with some of the most amazing people.  Jhon Baker, an amazing poet and philosopher has given me so much.  Noah Kaplowitz who has helped me further my causes and spent much time on corroborative works.  I think the three of us have leaned on each other so equally that it's kept us on our feet.  Scott Little, who's been giving me art lessons and spending time with me despite the fact he really hasn't had much of it.  Lars Jensen who's always been there for me, despite the ocean between us (you're going to get some English readers here, so you better start posting in English for us).
  My wife, Amy, who's put up with, and taken on, so much that I don't think I'd have survived RSD without her.  My mother; who brought me into this world and taught me to love and laugh, rage and cry.  Without her my son wouldn't be who he is today, and I wouldn't have been strong enough to make it through all my pain.  My father, Mike Shear, who spent so many hours driving from Iowa to here just to spend a few days at a time helping me when I had no one else.  I learned how to speak and succeed from my father, and how to laugh when things aren't at their best.  My stepfather Jeff, from whom I've learned to 'tell it like it is' and accept the fact that there's a lot of dumb asses out there.  My grandfather who I miss dearly.  He taught me how to be at peace in the world when we would go fishing or hunting together.  Firing a weapon still centers and empowers me to this day.  My grandmother, who taught me dedication to family and kept us from going under throughout the year.  My nephew Alex, who's gamed with me even when I've been blinded by pain and been useless.  I'll be on line again soon my friend.  And Corey Leese and the Divine Knights, Corey's stuck by me through thick and thin, and helped me find a group of fantastic new teammates to game with.
  Illinois Reflex Sympathetic Dystrophy Syndrome Association who's meetings have helped me feel like I'm still part of the world, and not alone in my struggles.  Congressman Manzullo's office, and Vera Moore of the VFW have been extremely helpful in my claims.  We may not have succeeded, but they still deserve recognition for all of their hard work and diligence.  McHenry County Marine Corps League, my brothers and sisters who have offered so much support, and given my son a Christmas, both on their own and through others who donated.
  I know it's asking a lot to have you all check out all these links, but these people deserve it.  They've given so much of themselves for me and my family, so please take the time to check them all out.  And to those of you who I haven't personally mentioned, leave a comment so I can include you in this 'thank you' post.
  Despite all the pain, and our eviction in seven days, I feel nothing but peace; happiness.  Blessed.

With all the gratitude I can muster,  Happy Holidays,

Kev

Friday, December 17, 2010

Back to the ER

  I spent several hours at the ER last night.  I was at a Marnie Corps League meeting when my outbreak started, and by the end of the meeting I had to be carried out.  I even blacked out while trying to get into the van.  They gave me my injections of pain killers directly into the muscle and didn't run an IV.  Having them administered this way worked far better than through an IV.  They took a bit longer to kick in, but lasted far longer.  In the future I'm going to request this form of administration..
  Tonight I'm hurting.  We had to drive to the Milwaukee V.A. to pick up my medical records.  There must have been over 100 pages of information.  Hopefully I'll be able to comb through it and present supporting facts for my case.  I only wish that the V.F.W. would have been doing this.
  I started working on a new song, and hope to have it up on my poetry site by tomorrow evening.  I've been developing the songs to fit into a CD titled 'Just One Breath', and the song I'm working on will have that title.  It's, perhaps, the lightest song I've written, and it feels good to do something more uplifting.
  I was featured at Web of Life.  So please take a few minutes and read the post, and check out their site.  These gentleman have a genuine love of life and belief in positives.  I think you'll all find it an uplifting experience.

I wanted to tell you all how much I appreciate all the support you all have given my family.  I'm quite anxious about our upcoming eviction, but I'm trying to focus on how it can be a useful tool in ensuring future veterans with RSD don't have to experience this.  Regardless, I am feeling something I haven't felt in quite a while.  Love.
It feels good to tell my friends and family that I love them, and too few people do it.  I'm not sure if there's a reason for not saying it, but I'm going to say it anyway.

With love and respect,
Kevin Shear

Wednesday, December 1, 2010

Updates and Free Time

When you have chronic pain there is no such thing as 'free time'.  Yesterday was spent shredding paper targets at the local pistol range with my best friend, and published poet, Jhon Baker.  I learned two fundamental truths over the last 24 hours.  First, once you fire a weapon, pistol or rifle, you'll crave it more than anything else.  Yesterday was such a freeing, and empowering, experience.  I can't even begin to thank Jhon enough.  So I made him a deal.  As soon as my benefits arrive I will buy some weapons of my own and pay for a trip to the range for the two of us.  I honestly don't want to wait long to do this.
  There's a link to Jhon's blog under my links section.  I would highly encourage anyone who enjoys poetry to check it out.  You won't be disappointed.
  The second truth I learned is that there is no such thing as free time when you have chronic pain.  You pay for every experience.  Today I'm paying the price, and it was worth every penny.
 
  Some updates and information is next on the agenda...
  The Chicago Tribune rescheduled for next Monday.  So next Monday we'll be getting photographed and interviewed.  The date change is bitter sweet, I want nothing more than to have the story run now, but, with the delay, I'll be able to do a little more phone work to get other individuals involved.  I really want to give the congressman's office a chance to have some free publicity for all the hard work they've done.
  There are several pages that the V.A. have set up on Facebook.  They explicitly pointed out that these pages where to keep in touch with veterans more efficiently.  I've posted on these pages several times; asking for them to discuss RSD, it's lack of rating schedule, my current situation, etc.  All of my comments have gone ignored, and one of them even had the VA suicide hotline people post up that I should call for help.  A little later I read the same post from them to another veteran.  Turns out that it's an auto response.  They must hit it when they don't want to deal with an issue.  I'll keep looking for a posting about RSD and I'll link it here should they ever follow through.
  I've become a member of a Facebook community for veterans with RSD.  If anyone would like to join us, please send me a message on Facebook, and I'll get you added.
  My contact with GM about their commercial stating they 'understood that everyone falls down and needs help up' was unproductive.  It seems that GM is more than willing to get bailed out, but as soon as an opportunity presented itself for them to help out a disabled veteran, they turned their backs.  I tried everyone from corporate to local dealerships, and they all where unwilling to help.  I would encourage anyone getting ready to shop for a new car to not go with GM.  Let them burn through their bail out and dwindle away.  Companies who publicly state that they're empathetic to plight and then privately scorn it should not be kept around.

Thursday, November 25, 2010

Giving Thanks

  Today is one of the few days I can give thanks for my loss of appetite.  I know I won't overeat today.  I'm thankful for all of the friends and family that have provided my family and I with so much support.  Without you I don't think we'd have been able to maintain our relationship, or our sanity.
  I'm thankful that I'm alive.  Without my life I'd not be able to share my thoughts.  I may not be able to run around with my son, but I can teach him how to be a decent human being; about things intellectual and philosophical.  And I love every minute that we spend playing video games together.
  I'm giving thanks for all the events that lead me to be here today, and for all of you who take time out of your lives to read my words.  I hope my readers get a portion of the satisfaction that I get in writing this blog and my creative works.  I may not have many followers listed on my page, but I'm being read.  I see it in my stats every day.  Even though my readers aren't 'following' me, I appreciate them taking the time to read.
  Again, thank you all for reading.

Kev

Monday, November 22, 2010

The List Grows

  The list of those willing to help me out in my daily activities is growing.  To those of you who have helped, my thanks.  If I have not mentioned you by name let me know.  I can post links for you in a minor form of repayment.
  I wanted to personally thank my nephew Alex for posting my YouTube video of "In Everything" on his Facebook page.  Alex has always been there for me and continues to help support my endeavors.  We often game together, but not often enough.  I've been asking for help spreading the word about my music in the hopes that it may get picked up by recording artists and Alex is providing some much needed coverage.
  I found out, this past Thursday, that the Marine Corps League's chaplain has people praying for me from the tip of Maine to the southern reaches of California.  I was floored.  Here was a group of people whom I didn't even know willing to dedicate a daily bit of their time to praying for me.
  So to those of you who are helping, my thanks.  And to those of you wanting to help - link it, read it, play it, paste it, spread it round the world.  Email Me for more information or pages you can link.  Help get my story and sound out to others in the hopes that it will make a difference, or bring some measure of solace to those suffering souls out there who need it.
Thanks for reading,
Kev

Sunday, November 21, 2010

Making Choices

The worst thing about RSD is having to choose what you're willing to suffer for.  I remember when I didn't have to evaluate everything based on the suffering that would ensue after the event.  It really opens your eyes to what's important.
Last night I went to a local pub with my brother and his girlfriend.  What a fantastic time.  He won some decent cash based on my pics for the UFC fights, and it was great to spend time with the two of them.  But today...
Today may be a hospital day.  I've already dosed myself with narcotic, muscle relaxer, and supplements.  My stomach is flip flopping from all the pain, and I'm afraid to stop moving because I don't want to pass out.  Just stopping for the short time to type this up is causing me distress.
I was planning on spending a majority of the day working on my writing and music.  Music is out for today because I won't be able to hold a guitar unless things calm down, or I want to finalize the trip to the hospital.  So I'll spend some time writing and perhaps game a bit.
Things aren't moving as fast as I'd like on my other blog, Shear's Shorts, but they're progressing.  The link to that page is at the bottom of my blog.  Hopefully I've been able to get a few people interested who will follow me, and brought some new readers to my good friends...
Thanks for reading.

Friday, November 19, 2010

So Much To Say

Because I'm home all day, with nothing much to do, I've been investing my time in music, art, and writing.  I started a new blog for my work.  If anyone is interested there is a link at the bottom of the page, or you can click here.

Today is the wake for a young lance corporal who was killed overseas.  He was only 20 years old and left behind a wife, 19 years old, and a daughter of only a few months.  Tomorrow they will lay him to rest in a local cemetery.  I wish I knew him;  could thank him for having made the ultimate sacrifice for our freedom and safety.
In the near future I will be posting a link to a foundation, set up by the mother of another dead marine, that utilizes Build-A-Bear to give hope to the children who's parent is overseas.  They're setting it up so that the parent can record a message before they ship out, and then the organization gives the recording to the child to be placed in a bear.  I'll have an embedded video and links for those of you who are willing to make donations.

I've been teetering on the edge of needing to go to the hospital.  The pain gets to the point where I'm ready to pass out and then resides.  Coastal tides of nightmare pain.  I imagine it could be equated to that feeling of nausea that comes and goes when you're sick.  You simply want to be sick and done with it.  I simply want to black out and be shot up with liquid pain relief.
Thanks for taking the time to read my words, and I hope you'll take a few moments to enjoy my creative side.

Friday, October 8, 2010

Friends

I wanted to take a minute to publicly thank two very good friends.  Our neighbors Chris and Jessie. 
Jessie is giving me a ride to Jhon Baker's open house this Saturday in celebration of his new book, and has spent several hours helping Amy and I watch our son Lincoln.  Without her there would have been several instances that could have ended badly because I wouldn't have been able to care for my two year old.
Chris has literally carried me to our van when I was going into shock.  He's always there for me when I need someone to talk to, and has spent countless hours playing online video games with me while I work through my pain.
Of all the horrid things that have gone down over the last year, these two have been invaluable blessings.
I only hope that one day I'll be able to return the favors.